Subject(s)
Hematologic Diseases , Self-Help Groups , Social Support , COVID-19/epidemiology , Canada/epidemiology , Child , Hematologic Diseases/epidemiology , Hematologic Diseases/psychology , Hematologic Neoplasms/epidemiology , Hematologic Neoplasms/psychology , Humans , SARS-CoV-2/isolation & purificationABSTRACT
Photovoice was employed as a clinical intervention to engage siblings of children with cancer, provide opportunity for sibling support, and elicit information about their lived experiences. Sibling support groups have been effective, however, none have utilized this intervention. Four teenagers who had a sibling diagnosed with cancer participated in a seven-week intervention group. Themes were identified to inform future clinical practice. Four main themes included: (i) support, (ii) changes, (iii) feelings, and (iv) Photovoice group experience. Photovoice, used as a clinical intervention, elicited valuable information and generated fruitful conversations, enabling siblings to relate to and learn from one another.
Subject(s)
Neoplasms , Siblings , Adolescent , Child , Communication , Emotions , Humans , Neoplasms/therapyABSTRACT
RESEARCH APPROACH: Photovoice, a participatory action research methodology, is a novel and promising intervention for adolescents with cancer. Photovoice was used as an intervention for eliciting and addressing the psychosocial needs of adolescents on active cancer treatment. PARTICIPANTS: Six adolescents, aged thirteen to seventeen years old, who were on active treatment or had completed treatment in the three months prior to recruitment participated in a seven-week photovoice group that took place from March to May 2017. Methodological Approach: Each of the seven sessions was recorded and later transcribed. A content analysis was used to identify themes that were analyzed using an integrated framework developed earlier. The framework broadly categorized the themes into six domains: (i) physical changes, (ii) psychosocial impacts, (iii) short-term social impacts, (iv) long-term social impacts, (v) impacts on holistic well-being, and (vi) informational needs. INTERPRETATION: Photovoice is an effective intervention for eliciting and addressing the psychosocial needs of adolescents on active cancer treatment.
Subject(s)
Neoplasms/psychology , Photography , Adolescent , Female , Health Services Research , Humans , Male , Needs Assessment , Neoplasms/therapyABSTRACT
PURPOSE: Photovoice is a novel and promising intervention for working with youth in healthcare settings. Despite this, few studies have examined the efficacy of photovoice as a clinical tool for working with teenagers who are on their cancer journey. To better understand the needs of teenagers with cancer and the ways that photovoice can be utilized to address these needs, a systematic review of the literature was undertaken. METHODS: Keyword searches of six databases were completed, including MEDLINE, EMBASE, PsycINFO, Social Work Abstracts, Sociological Abstracts, and Health and Psychosocial Instruments. Searches were limited to articles focusing on the psychosocial needs of adolescents, aged 13-17, who were on active cancer treatment. RESULTS: Sixty-four articles were identified that discussed the psychosocial needs of teenagers on active cancer treatment. The needs of these teenagers can be understood as being influenced by the physical changes and symptoms, psychological impact of diagnosis and treatment, short- and long-term social impacts of cancer, impact on holistic well-being, and need for clear, age-appropriate communication. Among these articles, only four articles used photovoice as a methodology and none examined the impact of photovoice as an intervention for teenagers who were currently on active treatment. CONCLUSION: Photovoice is uniquely positioned among other psychosocial interventions to help address the needs of teenagers on their cancer journey. Despite this, few researchers have examined the efficacy of photovoice as a psychosocial intervention for teenagers who are currently on active treatment.
Subject(s)
Neoplasms/psychology , Adolescent , Communication , Female , Humans , Male , NarrationABSTRACT
Diagnosis and treatment of childhood acute lymphoblastic leukemia (ALL) can be a highly stressful time for the entire family. While completion of treatment may bring relief to some families, it may also bring about additional anxieties and fear. The primary objective of this article is to present an analysis of the experiences, emotional states, and support needs of parents of pediatric cancer patients 2 months after treatment completion for ALL. Using a qualitative interpretive description approach, transcripts from interviews with 17 parents from the leukemia/lymphoma program of a large urban pediatric cancer center were analyzed using N-Vivo 10 data analysis software. Parents reported simultaneous feelings of relief and apprehension, changing relationships with their health care team and the experience of returning to a life following treatment. Results highlight the need for support for parents on completion of treatment.
Subject(s)
Adaptation, Psychological , Parents/psychology , Precursor Cell Lymphoblastic Leukemia-Lymphoma/psychology , Adolescent , Adult , Antineoplastic Agents/administration & dosage , Antineoplastic Agents/therapeutic use , Child , Child, Preschool , Drug Administration Schedule , Female , Humans , Infant , Male , Middle Aged , Patient Care Team , Pediatric Nursing , Precursor Cell Lymphoblastic Leukemia-Lymphoma/drug therapy , Precursor Cell Lymphoblastic Leukemia-Lymphoma/nursingABSTRACT
This study examines the experiences of fathers of children diagnosed with cancer. In this grounded theory study, participating fathers were qualitatively interviewed using a theoretical sampling approach. Results indicate fathers to be profoundly affected by their child's condition of cancer. Fathers' experiences include isolation and heightened sadness and uncertainty. Paternal roles comprise providing family support, sufficient resources, and seeking to maintain family stabilization. Post-diagnosis lived experience is described to hold new meaning as fathers reconcile the presence of childhood cancer within the life of their child and family. Strategies of resistance are demonstrated as fathers combat the devastating impacts of cancer through a commitment to family integration, healthy personal lifestyle and attitudes, support seeking, spirituality, and reframing of priorities. An emerging model is presented, as are implications for practice and recommendations.
Subject(s)
Adaptation, Psychological , Father-Child Relations , Fathers/psychology , Neoplasms , Adolescent , Adult , Child , Child, Preschool , Humans , Infant , Interviews as Topic , Male , Middle Aged , Quality of Life , Young AdultABSTRACT
For young people with cancer their process through adolescence is marked with disruption. The demands of treatment and resulting social isolation combined with issues of body image/self-esteem complicate this turbulent life cycle transition. The effects of'these disruptions require psychosocial staff to utilize creative approaches to treatment. The framework of the Teen Outreach Program (TOP) is to connect teens with leukemia/lymphoma to one another, and to reconnect them back with their peers by engaging them in "normal" events. The overwhelming response highlights the positive effect on teenagers' psychosocial health, thereby solidifying the importance of providing innovative therapeutic interventions for this under-serviced population. Further studies of the long-term impact of the program's success are warranted.
